Clinical Trial: The Dallas Hereditary Spherocytosis Cohort Study

Study Status: Terminated
Recruit Status: Terminated
Study Type: Observational



Official Title: The Dallas Hereditary Spherocytosis Cohort Study

Brief Summary:

The purpose of this study is to

  1. better characterize the short term and long term natural history of hereditary spherocytosis (HS) including diagnosis, complications, and indications for and response to splenectomy
  2. evaluate and describe the health-related quality of life in children with HS.