Study Status: Completed
Recruit Status: Completed
Study Type: Observational
Official Title: Neuronal Ceroid Lipofuscinosis and Associated Sleep Abnormalities
Brief Summary: Neuronal Ceroid Lipofuscinosis (NCL) also known at Batten's disease is the most common neurodegenerative disorder in children. Families often report the patient has a sleep disturbance. This is a questionnaire to be completed by the family to better understand the sleep pattern and sleep difficulties experienced by individuals who have been diagnosed with NCL.