Clinical Trial: International Diffuse Intrinsic Pontine Glioma (DIPG) Registry and Repository

Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational

Official Title: International Diffuse Intrinsic Pontine Glioma (DIPG) Registry and Repository

Brief Summary:

Doctors and other medical scientists want learn about the biology of DIPG and to develop better ways to diagnose and treat patients with DIPG. To do this, they need more information about the characteristics of DIPG tumors. Therefore, they want to establish a central location for clinical information and tumor tissue collected from DIPG patients.

The purposes of this study are:

To enroll patients diagnosed with DIPG in the International DIPG Registry and Repository.
To provide a central location for clinical information, scans, and tissue samples from patients with DIPG enrolled in the registry.
To collect tissue samples in order to study how DIPG works on the molecular level. Researchers may use the tissue samples to study molecules such as proteins and DNA. Proteins are needed for the body to function properly and DNA is the molecule that carries our genetic information. Other researchers will be able to use the stored samples in the future to learn more about DIPG. The information researchers get from the research studies will be kept in the registry along with the clinical information.
To help DIPG investigators around the world to work together to make more consistent diagnosis and better design of future research studies. We hope this will lead to better treatments for DIPG in the future.