Clinical Trial: Prospective, Longitudinal Natural History Study in Dystrophic Epidermolysis Bullosa

Study Status: Withdrawn
Recruit Status: Withdrawn
Study Type: Observational




Official Title: A Prospective, Longitudinal Assessment of Disease Severity in Subjects With Dystrophic Epidermolysis Bullosa (DEB)

Brief Summary: The objective of this study is to characterize the extent and severity of disease in subjects with DEB and the progression of disease over a timeframe relevant to interventional studies. The data from this study will be used to inform the study design and address statistical considerations of future treatment protocols.