Clinical Trial: Assessment of the Educational Experiences for Patients Newly Diagnosed With Nephrotic Syndrome

Study Status: Completed
Recruit Status: Completed
Study Type: Observational [Patient Registry]




Official Title: Assessment of the Educational Experience for Patients With Newly Diagnosed Nephrotic Syndrome

Brief Summary: The purpose of this study is to learn about patient, caregiver and healthcare worker perspectives on educating patients with newly-diagnosed Nephrotic Syndrome. All patients enrolled in the Contact Registry with Nephrotic Syndrome will be invited via email to participate in this study.