Study Status: Completed
Recruit Status: Completed
Study Type: Observational
Official Title: The Health-Related Quality of Life in Patients With Hereditary Multiple Exostoses
Brief Summary: The purpose of this study is to assess the health-related quality of life of subjects who have Hereditary Multiple Exostoses and to develop a disease specific quality of life survey. The investigators hypothesize that there are a wide range of quality of life experiences for patients with this syndrome.