Clinical Trial: A National Registry For Pulmonary Alveolar Proteinosis

Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational [Patient Registry]




Official Title: A National Registry For Pulmonary Alveolar Proteinosis

Brief Summary: The major goal of this study is to establish a National PAP Registry to help make reliable new research tests available to doctors to improve the diagnosis of PAP, increase awareness and knowledge of PAP, and give patients a 'seat at the table' in planning and conducting PAP research including the clinical testing of several new potential therapies.