Status | Study |
Completed |
Study Name: Study of Sunitinib in Patients With Von Hippel-Lindau (VHL) Disease Condition: Von Hippel-Lindau Disease Date: 2010-03-18 Interventions: Drug: Sunitinib Sunitinib, 50 mg PO daily, 6 weeks courses with schedule 4/2 (4 weeks of treatment follo |
Terminated |
Study Name: Bevacizumab (Avastin) in Unresectable/Recurrent Hemangioblastoma From Von-Hippel-Lindau Disease Condition: Hemangioblastomas Von Hippel Lindau Disease Date: 2009-11-16 Interventions: Drug: Avastin Patients will receive Bevacizumab (Avastin) 10mg/kg IV every two weeks for 6 months |
Completed |
Study Name: Visualizing Vascular Endothelial Growth Factor (VEGF) Producing Lesions in Von Hippel-Lindau Disease Condition: Von Hippel-Lindau Disease Hemangioblastoma Renal Cell Carc Date: 2009-09-02 Interventions: Other: 89Zr bevacizumab PET scan Patients will be injected intravenously with 37 MBq, protein dose 5 mg |
Terminated |
Study Name: Sunitinib Malate to Treat Advanced Eye Disease in Patients With Von Hippel-Lindau Syndrome Condition: Von Hippel-Lindau Syndrome Date: 2008-05-06 Interventions: Drug: Sunitinib Malate Participants were expected to receive 9 months of sunitinib malate therapy admini |
Completed |
Study Name: Use of the Atkins Diet for Children With Sturge Weber Syndrome Condition: Epilepsy Sturge Weber Syndrome Date: 2008-03-14 Interventions: Dietary Supplement: modified Atkins diet High fat, low carbohydrate diet |
Completed |
Study Name: Incidence of Ocular Antibodies in Patients With Sturge - Weber Syndrome (SWS) Condition: Sturge - Weber Syndrome (SWS) Date: 2008-01-25 Interventions: Other: blood sample tear drop sample blood sample tear drop sample |
Recruiting |
Study Name: Registry for Vascular Anomalies Associated With Coagulopathy Condition: Multifocal Lymphangioendotheliomatosis With Thrombocytopenia Cutaneovisceral Date: 2007-12-18 Interventions: Other: no intervention no intervention - observational only |
Completed |
Study Name: Phase II Study of Vandetanib in Individuals With Kidney Cancer Condition: Renal Cancer Von Hippel Lindau Date: 2007-12-01 Interventions: Drug: ZACTIMA (Vandetanib) (ZD6474) |
Completed |
Study Name: Treatment of Exudative and Vasogenic Chorioretinal Diseases Including Variants of AMD and Other CNV Related Maculopathy Condition: Coats' Disease Idiopathic Retinal Telangiectasia Retinal A Date: 2007-05-04 Interventions: Drug: ranibizumab injection (0.5 mg) ranibizumab 10mg mg/ml. , 0.3ml/vial, 0.05 ml./injection intravitre |
Completed |
Study Name: Incidence of Hepatic Hemangiomatosis in Patients With Cutaneous Hemangiomas Condition: Hemangioma Date: 2006-09-07 Interventions: Procedure: abdominal ultrasound |