Status | Study |
RECRUITING |
Study Name: Impact of Oxygen Therapy on Fatigue in Patients With Hypermobile-type Ehlers-Danlos Syndrome Condition: Ehlers-Danlos Syndrome Date: 2021-05-06 Interventions: oxygen treatment (5 L/minute for 30 minutes by nasal cannula, twice/day) |
Not yet recruiting |
Study Name: Genetics of Ehlers-Danlos Syndrome Condition: Genetics Syndrome Ehlers-Danlos Syndrome Date: 2017-03-22 Interventions: Diagnostic Test: Genotyping Genotyping by next generation sequencing |
Recruiting |
Study Name: Assessment of Small Fiber Neuropathy in Rare Diseases Using Sudoscan Condition: Small Fiber Neuropathy Fabry Disease Date: 2016-09-12 Interventions: Device: Sudoscan The Sudoscan |
Recruiting |
Study Name: The Comorbidity of Benign Hypermobility Joint Syndrome and Functional Constipation in Children Condition: Benign Hypermobility Syndrome Functional Constipation Date: 2016-07-16 |
Completed |
Study Name: Patient Education Program and Ehlers-Danlos Syndrome Condition: Hypermobility Type Ehlers-Danlos Syndrome Date: 2016-06-24 Interventions: Other: patient education program The PREDUSED patient educ |
Active, not recruiting |
Study Name: Investigation of Hypermobility, Biomarkers, and Pain Generators in Chronic Pain Patients Condition: Low Back Pain, Mechanical Spinal Stenosis Nerve Root Disor Date: 2016-04-24 Interventions: Other: Beighton score for hypermobility The beighton score is a 9 point score of flexibility, used for p |
Completed |
Study Name: Obstructive Sleep Apnoea in Children and Adolescents With Ehlers-Danlos Syndrome Condition: Ehler's Danlos Syndrome Obstructive Sleep Apnea Date: 2016-03-14 Interventions: Other: No intervention |
Enrolling by invitation |
Study Name: Origins and Impact of EDS in Connective Tissues and Skin Condition: Ehlers-Danlos Syndrome Date: 2016-03-02 Interventions: Procedure: Orthopaedic & Gynaecology surgery Patients will have the surgery they require for their t |
Recruiting |
Study Name: Angiotensin II Receptor Blockade in Vascular Ehlers Danlos Syndrome (ARCADE) Condition: Ehlers-Danlos Syndrome, Vascular Type Date: 2015-10-23 Interventions: Drug: Irbesartan Irbesartan: 1 |
Completed |
Study Name: Obstructive Sleep Apnoea in Ehlers-Danlos Syndrome Condition: Ehlers-Danlos Syndrome Obstructive Sleep Apnea Date: 2015-04-27 |