Status | Study |
RECRUITING |
Study Name: Screening Trial for Pain Relief in Schwannomatosis (STARFISH) Condition: Schwannomatosis Date: 2023-01-05 Interventions: A chimeric immunoglobulin G mAb, via intravenous infusion. |
Completed |
Study Name: Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With NF Condition: Neurofibromatosis Date: 2015-04-29 Interventions: Other: Questionnaires All subjects will complete baseline psychological assessments prior to their medic |
Completed |
Study Name: Resiliency Training for Patients With Neurofibromatosis Via Videoconferencing With Skype Condition: Neurofibromatosis Neurofibromatosis I Neurofibromatosis 2 Date: 2014-11-17 Interventions: Behavioral: The Relaxation Response Resiliency Program (3RP) via Skype 8-week group intervention, delive |
Recruiting |
Study Name: Neurofibromatosis (NF) Registry Portal Condition: Neurofibromatosis 1 Neurofibromatosis 2 Date: 2013-05-22 |