Resources
Lighthouse International
111 E 59th St
New York, NY 10022-1202
Tel: (800)829-0500
Email: [email protected]
Internet: http://www.lighthouse.org
National Hydrocephalus Foundation
12413 Centralia Rd.
Lakewood, CA 90715-1653
USA
Tel: (562)924-6666
Fax: (562)924-6666
Tel: (888)857-3434
Email: [email protected]
Internet: http://www.nhfonline.org
Hydrocephalus Association
4340 East West Highway Ste 950
Bethesda, MD 20814
USA
Tel: (301)202-3811
Fax: (301)202-3813
Tel: (888)598-3789
Email: [email protected]
Internet: http://www.hydroassoc.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Dandy-Walker Syndrome Network
5030 142nd Path West
Apple Valley, MN 55124
USA
Tel: (612)423-4008
Hydrocephalus Support Group, Inc.
1933 Mistflower Glen Ct.
Chesterfield, MO 63005-4236
USA
Tel: (636)532-8228
Fax: (314)251-5871
Email: [email protected]
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Dandy-Walker Alliance, Inc.
10325 Kensington Pkwy
Suite 384
Kensington, MD 20895
Tel: (877)326-3992
Email: [email protected]
Internet: http://www.dandy-walker.org
Source: http://www.webmd.com