Disease: CAH

Resources

CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk

MAGIC Foundation
6645 W. North Avenue
Oak Park, IL 60302
Tel: (708)383-0808
Fax: (708)383-0899
Tel: (800)362-4423
Email: [email protected]
Internet: http://www.magicfoundation.org

National Adrenal Diseases Foundation
505 Northern Bloulevard
Great Neck, NY 11021
USA
Tel: (516)487-4992
Fax: (516)829-5710
Email: [email protected]
Internet: http://www.nadf.us/

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com

Ambiguous Genitalia Support Network
P.O. Box 313
Clements, CA 95227-0313
USA
Tel: (209)727-0313

Child Growth Foundation
21 Malvern Drive
Sutton Coldfield
London, B76 1PZ
United Kingdom
Tel: 442089950257
Email: [email protected] or [email protected]
Internet: http://www.childgrowthfoundation.org

NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Fax: (866)760-5947
Tel: (800)370-2943
TDD: (888)320-6942
Email: [email protected]
Internet: http://www.nichd.nih.gov/

CARES Foundation, Inc.
2414 Morris Avenue, Suite 110
Union, NJ 07083
USA
Tel: (908)364-0272
Fax: (908)686-2019
Tel: (866)227-3737
Email: [email protected]
Internet: http://www.caresfoundation.org

Hormone Health Network
8401 Connecticut Avenue
Suite 900
Chevy Chase, MD 20815-5817
Fax: (310)941-0259
Tel: (800)467-6663
Email: [email protected]
Internet: http://www.hormone.org/

Congenital Adrenal Hyperplasia Education and Support Network
19724 East Pine #149
Catossa, OK 74015
USA
Tel: (918)604-4039
Email: [email protected]
Internet: http://www.congenitaladrenalhyperplasia.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

CAH (Congenital Adrenal Hyperplasia) Support Group
2 Windrush Close
Flitwick
Bedfordshire, MK45 1PX
United Kingdom
Tel: 08006523181
Tel: 08006523181
Email: [email protected]
Internet: http://www.livingwithcah.com/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

Congenital Adrenal Hyperplasia Support Group
PO Box 66
Waihi
Hauraki, 3641
New Zealand
Tel: 6433584507
Fax: 6433584506
Tel: 0800224698
Email: [email protected]
Internet: http://www.cah.org.nz/

Accord Alliance
531 Route 22 East #244
Whitehouse Station, NJ 08889
USA
Tel: (908)349-0534
Fax: (801)349-0534
Email: [email protected]
Internet: http://www.accordalliance.org

Source: http://www.webmd.com

Disorder Subdivisions

  • 21-hydroxylase deficiency
  • 11-Beta hydroxylase deficiency
  • 17a-hydroxylase deficiency
  • congenital lipoid adrenal hyperplasia
  • 3-Beta-hydroxysteroid dehydrogenase deficiency

Source: http://www.webmd.com

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