Disease: Labhart-Willi Syndrome

Resources

Prader-Willi Syndrome Association (USA)
8588 Potter Park Drive, Suite 500
Sarasota, FL 34238
USA
Tel: (941)312-0400
Fax: (941)312-0142
Tel: (800)926-4797
Email: webmaster1@pwsausa.org
Internet: http://www.pwsausa.org

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Prader-Willi Syndrome Association (UK)
125A London Rd
Derby, DE1 2QQ
United Kingdom
Fax: 01332360401
Tel: 01332365676
Email: admin@pwsa.co.uk
Internet: http://www.pwsa.co.uk

NIH/National Institute of Child Health and Human Development
31 Center Dr
Building 31, Room 2A32
MSC2425
Bethesda, MD 20892
Fax: (866)760-5947
Tel: (800)370-2943
TDD: (888)320-6942
Email: NICHDInformationResourceCenter@mail.nih.gov
Internet: http://www.nichd.nih.gov/

Prader-Willi France
10 Rue Charles Clement
Mondrepuis, F02500
France
Tel: 33323987904
Fax: 33323987904
Email: jean-yves.belliard@wanadoo.fr
Internet: http://www.perso.wanadoo.fr/pwillifr

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Foundation for Prader-Willi Research
5455 Wilshire Blvd
Suite 2020
Los Angeles, CA 90036
Tel: (760)536-3027
Fax: (888)559-4105
Email: tthoet@fpwr.org
Internet: http://www.fpwr.org

International Prader Willi Syndrome Organization
c/o Baschirotto Institute for Rare Diseases (BIRD)
Via Bartolomeo Bizio, 1
Costozza (VI), 36023
Italy
Tel: 390444555557
Fax: 390444555557
Email: g.fornas@alice.it
Internet: http://www.ipwso.org

Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: mindy.tueller@utah.edu
Internet: http://www.medicalhomeportal.org

Source: http://www.webmd.com

Disorder Subdivisions

  • None

Source: http://www.webmd.com

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