Disease: LGMD

Resources

Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: mda@mdausa.org
Internet: http://www.mda.org/

Muscular Dystrophy Campaign
61 Southwark Street
London, SE1 0HL
United Kingdom
Tel: 02078034800
Email: info@muscular-dystrophy.org
Internet: http://www.muscular-dystrophy.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

Society for Muscular Dystrophy Information International
P.O. Box 7490
Bridgewater
Nova Scotia, B4V 2X6
Canada
Tel: 9026853961
Fax: 9026853962
Email: smdi@auracom.com
Internet: http://www.nsnet.org/smdi/

New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: horizons@new-horizons.org
Internet: http://www.new-horizons.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3174
Fax: (650)462-3144
Email: info@letthemhear.org
Internet: http://www.letthemhear.org

Jain Foundation Inc.
2310 130th Avenue NE
Suite B101
Bellevue, WA 98005
Tel: (425)882-1492
Fax: (240)282-0510
Email: plavimittal@jain-foundation.org
Internet: http://www.jain-foundation.org

Cure CMD (Congenital Muscular Dystrophy)
P.O. Box 701
Olathe, KS 66051
USA
Tel: (866)400-3626
Email: info@curecmd.com
Internet: http://www.curecmd.org

Child Neurology Foundation
201 Chicago Ave, #200
Minneapolis, MN 55415
USA
Tel: (952)641-6100
Fax: (952)881-6276
Tel: (877)263-5430
Email: jstone@childneurologyfoundation.org
Internet: http://www.childneurologyfoundation.org

LGMD2I Research Fund
PO Box 245
Bellevue, WA 98009
Tel: (425)460-2554
Fax: (425)460-1236
Email: claudiam@lgmd2ifund.org
Internet: http://www.lgmd2ifund.org

Global FKRP Registry
TREAT-NMD Office
Institute of Genetic Medicine
Newcastle University
International Centre for Life
Newcastle upon Tyne, NE1 3BZ
United Kingdom
Tel: 4401912418617
Fax: 4401912418770
Email: coordinator@fkrp-registry.org
Internet: https://www.fkrp-registry.org/

Source: http://www.webmd.com

Disorder Subdivisions

  • None

Source: http://www.webmd.com

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