Disease: Linear Nevus Sebacous Syndrome

Resources

Nevus Network
PO Box 305
West Salem, NC 44287
USA
Tel: (419)853-4525
Fax: (405)377-3403
Email: info@nevusnetwork.org
Internet: http://www.nevusnetwork.org/

Foundation for Ichthyosis & Related Skin Types
2616 N Broad Street
Colmar, PA 18915
Tel: (215)997-9400
Fax: (215)997-9403
Tel: (800)545-3286
Email: info@firstskinfoundation.org
Internet: http://www.firstskinfoundation.org

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

Proteus Syndrome Foundation
4915 Dry Stone Drive
Colorado Springs, CO 80923
USA
Tel: (901)756-9375
Email: kimhoag01@comcast.net
Internet: http://www.proteus-syndrome.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

CLOVES Syndrome Community
PO Box 406
West Kennebunk, ME 04094
Tel: (207) 281-2130
Email: clovessyndrome@gmail.com
Internet: http://www.clovessyndrome.org

Source: http://www.webmd.com

Disorder Subdivisions

  • angora hair nevus syndrome
  • Becker nevus syndrome
  • CHILD syndrome
  • nevus comedonicus syndrome
  • phacomatosis pigmentokeratotica
  • Proteus syndrome
  • Schimmelpenning syndrome
  • type 2 segmental Cowden disease
  • Garcia-Hafner-Happle syndrome

Source: http://www.webmd.com

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