Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
National Tay-Sachs and Allied Diseases Association, Inc.
2001 Beacon Street
204
Brookline, MA 02146-4227
USA
Tel: (617)277-4463
Fax: (617)277-0134
Tel: (800)906-8723
Email: [email protected]
Internet: http://www.NTSAD.org
National Niemann-Pick Disease Foundation, Inc.
401 Madison Avenue
Suite B
PO Box 49
Fort Atkinson, WI 53538-0049
Tel: (920)563-0930
Fax: (920)563-0931
Tel: (877)287-3672
Email: [email protected]
Internet: http://www.nnpdf.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Ara Parseghian Medical Research Foundation
3530 E. Campo Abierto
Suite 105
Tucson, AZ 85718-3327
USA
Tel: (520)577-5106
Fax: (520)577-5212
Email: [email protected]
Internet: http://www.parseghian.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Instituto de Errores Innatos del Metabolismo
Carrera 7 No 40 - 62
Bogota,
Colombia
Tel: 5713208320
Email: [email protected]
Internet: http://www.javeriana.edu.co/ieim/programas_ieim.htm
Hide & Seek Foundation for Lysosomal Disease Research
6475 East Pacific Coast Highway Suite 466
Long Beach, CA 90803
Tel: (877)621-1122
Fax: (866)215-8850
Email: [email protected]
Internet: http://www.hideandseek.org
Source: http://www.webmd.com
