Disease: Lipomatosis of Pancreas Congenital

Resources

Shwachman-Diamond Syndrome Foundation
127 Western Avenue
Sherborn, MA 01770
USA
Tel: (888)825-7373
Fax: (888)825-7373
Tel: (888)825-7373
Email: info@shwachman-diamond.org
Internet: http://www.shwachman-diamond.org

National Neutropenia Network
P.O. Box 1693
Brighton, MI 48116
USA
Tel: (517)294-0736
Email: leereeves99@gmail.com
Internet: http://www.neutropenianet.org

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov
Internet: http://www.nhlbi.nih.gov/

NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583
Email: NDDIC@info.niddk.nih.gov
Internet: http://www2.niddk.nih.gov/

Neutropenia Support Association, Inc.
971 Corydon Avenue
P.O. Box 243
Winnepeg
Manitoba, R3M 3S7
Canada
Tel: 2044898454
Tel: 8006638876
Email: stevensl@neutropenia.ca
Internet: http://www.neutropenia.ca

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Source: http://www.webmd.com

Disorder Subdivisions

  • None

Source: http://www.webmd.com

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