Disease: Lymphedema Hereditary

Resources

National Lymphedema Network
116 New Montgomery Street
Suite 235
San Francisco, CA 94105
Tel: (415)908-3681
Fax: (415)908-3813
Tel: (800)541-3259
Email: nln@lymphnet.org
Internet: http://www.lymphnet.org

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov
Internet: http://www.nhlbi.nih.gov/

Lymphovenous Canada
8 Silver Ave
Toronto
Ontario, M6R 1X8
Canada
Tel: 4165332428
Email: info@lymphovenous-canada.ca
Internet: http://www.lymphovenous-canada.ca

Vascular Disease Foundation
550 M Ritchie Highway
PMB-281
Severna Park, MD 21146
Tel: (443)261-5564
Tel: (888)833-4463
Email: robert.greenberg@vdf.org
Internet: http://www.vdf.org

Lymphatic Research Foundation
40 Garvies Point Road
Glen Cove, NY 11542
USA
Tel: (516)625-9675
Fax: (516)625-9410
Email: lrf@lymphaticresearch.org
Internet: http://www.lymphaticresearch.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Source: http://www.webmd.com

Disorder Subdivisions

  • congenital hereditary lymphedema
  • hereditary lymphedema, type I
  • lymphedema praecox
  • lymphedema tarda
  • Milroy disease
  • Nonne-Milroy disease
  • lymphedema-distichiasis

Source: http://www.webmd.com

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