Disease: Motoneuron Disease

Resources

Amyotrophic Lateral Sclerosis Association
27001 Agoura Road
Suite 250
Calabasas Hills, CA 91301-5104
USA
Tel: (818)880-9007
Fax: (818)880-9006
Tel: (800)782-4747
TDD: (818)593-3540
Email: [email protected]
Internet: http://www.alsa.org

Families of Spinal Muscular Atrophy
925 Busse Road
Elk Grove Village, IL 60007
Tel: (847)367-7620
Tel: (800)886-1762
Email: [email protected]
Internet: http://www.fsma.org/

Motor Neurone Disease Association
PO Box 246
Northampton, NN1 2BG
United Kingdom
Tel: 01604250505
Fax: 441604624726
Email: [email protected]
Internet: http://www.mndassociation.org

Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: [email protected]
Internet: http://www.mda.org/

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

MND Scotland
76 Firhill Rd
Glasgow, G20 7BA
Scotland
Tel: 01419451077
Fax: 01419452578
Email: [email protected]
Internet: http://www.mndscotland.org.uk/

International Alliance of ALS/MND Associations
P.O. Box 246
Northampton, NN1 2PR
United Kingdom
Tel: 441604611821
Fax: 441604624726
Email: [email protected]
Internet: http://www.alsmndalliance.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Association for Frontotemporal Degeneration
Radnor Station Building #2, Suite 320
290 King of Prussia Road
Radnor, PA 19087
Tel: (267)514-7221
Tel: (866)507-7222
Email: [email protected]
Internet: http://www.theaftd.org

Source: http://www.webmd.com

Disorder Subdivisions

  • Progressive Bulbar Palsy
  • Amyotrophic Lateral Sclerosis
  • Spinal Muscular Atrophy, All Types
  • Kugelberg-Welander Syndrome
  • Lou Gehrig's Disease, Included
  • Duchenne's Paralysis
  • Werdnig-Hoffmann Disease
  • Juvenile Spinal Muscular Atrophy
  • ALS Included
  • Benign Focal Amyotrophy
  • Infantile Spinal Muscular Atrophy (all types)

Source: http://www.webmd.com

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