Disease: Nephropathy and Deafness Hereditary

Resources

American Kidney Fund, Inc.
11921 Rockville Pike
Suite 300
Rockville, MD 20852
USA
Tel: (800)638-8299
Email: [email protected]
Internet: http://www.kidneyfund.org

National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Tel: (212)889-2210
Fax: (212)689-9261
Tel: (800)622-9010
Email: [email protected]
Internet: http://www.kidney.org

Urology Care Foundation
1000 Corporate Blvd
Linthicum, MD 21090
USA
Tel: (410)689-3700
Fax: (410)689-3896
Tel: (800)828-7866
Email: [email protected]
Internet: http://www.urologyhealth.org/

NIH/National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda, MD 20892-3580
Fax: (703)738-4929
Tel: (800)891-5390
TDD: (866)569-1162
Email: [email protected]
Internet: http://www.kidney.niddk.nih.gov/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3174
Fax: (650)462-3144
Email: [email protected]
Internet: http://www.letthemhear.org

Perkins School for the Blind
175 North Beacon Street
Watertown, MA 02472
Tel: (617)924-3434
Fax: (617)926-2027
Email: [email protected]
Internet: http://www.Perkins.org

National Consortium on Deaf-Blindness
The Teaching Research Institute
345 N. Monmouth Avenue
Monmouth, OR 97361
Tel: (800)438-9376
Fax: (503)838-8150
Tel: (800)438-9376
TDD: (800)854-7013
Email: [email protected]
Internet: http://www.nationaldb.org

Kidney & Urology Foundation of America, Inc.
2 West 47th Street
Suite 401
New York, NY 10036
Tel: (212)629-9770
Fax: (212)629-5652
Tel: (800)633-6628
Email: [email protected]
Internet: http://www.kidneyurology.org

Alport Syndrome Foundation
1608 E. Briarwood Terrace
Phoenix, AZ 85048-9414
Tel: (480)460-0621
Fax: (480)460-0621
Email: [email protected]
Internet: http://www.alportsyndrome.org

Source: http://www.webmd.com

Disorder Subdivisions

  • Autosomal Dominant Alport Syndrome (ADAS)
  • Autosomal Recessive Alport Syndrome (ARAS)
  • X-Linked Alport Syndrome (XLAS)

Source: http://www.webmd.com

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