Resources
Charcot-Marie-Tooth Association
PO Box 105
Glenolden, PA 19036
Tel: (610)499-9264
Fax: (610)499-9267
Tel: (800)606-2682
Email: [email protected]
Internet: http://www.charcot-marie-tooth.org
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: [email protected]
Internet: http://www.mda.org/
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Hereditary Neuropathy Foundation, Inc.
432 Park Avenue South, 4th Floor
New York, NY 10128
Tel: (212)722-8396
Tel: (855)435-7268
Email: [email protected]
Internet: http://www.hnf-cure.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5659
Fax: (773)702-5577
Internet: http://peripheralneuropathycenter.uchicago.edu/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3174
Fax: (650)462-3144
Email: [email protected]
Internet: http://www.letthemhear.org
Child Neurology Foundation
201 Chicago Ave, #200
Minneapolis, MN 55415
USA
Tel: (952)641-6100
Fax: (952)881-6276
Tel: (877)263-5430
Email: [email protected]
Internet: http://www.childneurologyfoundation.org
Potocki-Lupski Syndrome Outreach Foundation, Inc
2305 Kitty Hawk Dr
Plano, TX 75025
Tel: (214)435-8288
Email: [email protected]
Internet: http://www.ptlsfoundation.org
Source: http://www.webmd.com