Disease: Oral Facial Digital Syndrome

Resources

National Foundation for Ectodermal Dysplasias
6 Execuitive Drive
Suite 2
Fairview Hiights, IL 62208
Tel: (618)566-2020
Fax: (618)566-4718
Email: [email protected]
Internet: http://www.nfed.org

Children's Craniofacial Association
13140 Coit Road
Suite 517
Dallas, TX 75240
USA
Tel: (214)570-9099
Fax: (214)570-8811
Tel: (800)535-3643
Email: [email protected]
Internet: http://www.ccakids.com

FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Tel: (423)266-1632
Fax: (423)267-3124
Tel: (800)332-2373
Email: [email protected]
Internet: http://www.faces-cranio.org

The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org

Let's Face It
University of Michigan, School of Dentistry / Dentistry Library
1011 N. University
Ann Arbor, MI 48109-1078
USA
Tel: (360)676-7325
Email: [email protected]
Internet: http://www.dent.umich.edu/faceit

AmeriFace
P.O. Box 751112
Limekiln, PA 19535
USA
Tel: (702)769-9264
Fax: (702)341-5351
Tel: (888)486-1209
Email: [email protected]
Internet: http://www.ameriface.org

Prescription Parents
22 Ingersoll Road
P.O. Box 920554
Wellesley, MA 02181
USA
Tel: (617)499-1936
Email: [email protected]
Internet: http://www.prescriptionparents.org

National Foundation of Dentistry For the Handicapped
1800 15th Street
Suite 100
Denver, CO 80202
USA
Tel: (303)534-5360
Fax: (303)534-5290
Email: [email protected]
Internet: http://www.nfdh.org

NIH/National Institute of Dental and Craniofacial Research
Building 31, Room 2C39
31 Center Drive, MSC 2290
Bethesda, MD 20892
USA
Tel: (301)496-4261
Fax: (301)480-4098
Tel: (866)232-4528
Email: [email protected]
Internet: http://www.nidcr.nih.gov/

National Foundation for Facial Reconstruction
333 East 30th Street, Lobby Unit
New York, NY 10016
Tel: (212)263-6656
Fax: (212)263-7534
Internet: http://www.nffr.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

Source: http://www.webmd.com

Disorder Subdivisions

  • OFDS Type I (Papillon-Leage-Psaume Syndrome)
  • OFDS Type II (Mohr Syndrome)
  • OFDS Type III (Sugarman Syndrome)
  • OFDS Type IV (Baraitser-Burn Syndrome
  • OFDS Type V (Thurston Syndrome)
  • OFDS Type VI (Varadi Syndrome)
  • OFDS Type VII (Whelan Syndrome)
  • OFDS Type VIII (Edwards Syndrome)
  • OFDS Type IX (OFD Syndrome with Retinal Abnormalities)
  • OFDS Type X (OFD with Fibular Aplasia)

Source: http://www.webmd.com

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