Disease: CHARGE Syndrome

Resources

The Arc
1825 K Street NW, Suite 1200
Washington, DC 20006
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: [email protected]
Internet: http://www.thearc.org

National Association for Parents of Children with Visual Impairments (NAPVI)
P.O. Box 317
Watertown, MA 02272-0317
Tel: (617)972-7441
Fax: (617)972-7444
Tel: (800)562-6265
Email: [email protected]
Internet: http://www.napvi.org

CHARGE Syndrome Foundation, Inc.
141 Middle Neck Rd
Sand Point, NY 11050
USA
Tel: (516)684-4720
Fax: (516)883-9060
Tel: (800)442-7604
Email: [email protected]
Internet: http://www.chargesyndrome.org

American Speech-Language-Hearing Association
2200 Research Boulevard
Rockville, MD 20850-3289
United States
Tel: (301)296-5700
Fax: (301)296-8580
Tel: (800)638-8255
Email: [email protected]
Internet: http://www.asha.org

American Foundation for the Blind
2 Penn Plaza
Suite 1102
New York, NY 10121
Tel: (212)502-7600
Fax: (888)545-8331
Tel: (800)232-5463
TDD: (212)502-7662
Email: [email protected]
Internet: http://www.afb.org

Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
USA
Tel: (407)895-0802
Email: [email protected]
Internet: http://www.birthdefects.org

Helen Keller National Center for Deaf-Blind Youths and Adults
141 Middle Neck Road
Sands Point, NY 11050
USA
Tel: (516)944-8900
Fax: (516)944-7302
TDD: (516)944-8637
Email: [email protected]
Internet: http://www.hknc.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3174
Fax: (650)462-3144
Email: [email protected]
Internet: http://www.letthemhear.org

American Academy of Audiology
11730 Plaza America Drive, Suite 300
Reston, VA 20190
Tel: (703)790-8466
Fax: (703)790-8631
Tel: (800)222-2336
Email: [email protected]
Internet: http://www.audiology.org

Perkins School for the Blind
175 North Beacon Street
Watertown, MA 02472
Tel: (617)924-3434
Fax: (617)926-2027
Email: [email protected]
Internet: http://www.Perkins.org

National Consortium on Deaf-Blindness
The Teaching Research Institute
345 N. Monmouth Avenue
Monmouth, OR 97361
Tel: (800)438-9376
Fax: (503)838-8150
Tel: (800)438-9376
TDD: (800)854-7013
Email: [email protected]
Internet: http://www.nationaldb.org

Source: http://www.webmd.com

Disorder Subdivisions

  • None

Source: http://www.webmd.com

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