Resources
Chromosome Disorder Outreach, Inc.
P.O. Box 724
Boca Raton, FL 33429-0724
USA
Tel: (561)395-4252
Fax: (561)395-4252
Email: [email protected]
Internet: http://www.chromodisorder.org/CDO/
PRISMS (Parents & Researchers Interested in Smith-Magenis Syndrome)
21800 Town Center Plaza
Suite 266A-633
Sterling, VA 20164
USA
Tel: (972)231-0035
Fax: (972)499-1832
Email: [email protected]
Internet: http://www.prisms.org
American Society for Deaf Children
800 Florida Avenue NE
2047
Washington, DC 20002-3695
Tel: (866)895-4206
Fax: (410)795-0965
Tel: (800)942-2732
Email: [email protected]
Internet: http://www.deafchildren.org
Smith-Magenis Syndrome Foundation
London, WC1 N3XX
United Kingdom
Tel: 02074195007
Email: [email protected]
Internet: http://www.smith-magenis.co.uk/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Taylor Bug Kisses Foundation
2218 Boulder Dr.
Normal, IL 61761
Tel: (309)451-1431
Email: [email protected]
Internet: http://www.taylorbugkisses.org
Potocki-Lupski Syndrome Outreach Foundation, Inc
2305 Kitty Hawk Dr
Plano, TX 75025
Tel: (214)435-8288
Email: [email protected]
Internet: http://www.ptlsfoundation.org
Source: http://www.webmd.com
