Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
United Leukodystrophy Foundation
224 N. 2nd St.
Suite 2
DeKalb, IL 60115
Tel: (815)748-3211
Tel: (800)728-5483
Email: [email protected]
Internet: http://www.ulf.org/
ELA - European Association Against Leukodystrophies
2, rue Mi-les-Vignes
54521
Laxou Cedex, 61024
France
Tel: 33383309334
Fax: 33383300068
Email: [email protected]
Internet: http://www.ela-asso.com
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Hunter's Hope Foundation, Inc.
PO Box 643
6368 West Quaker Street
Orchard Park, NY 14127
Tel: (716)667-1200
Fax: (716)667-1212
Tel: (877)984-4673
Email: [email protected]
Internet: http://www.huntershope.org
Australian Leukodystrophy Support Group, Inc.
Nerve Centre
54 Railway Road
Blackburn, VIC 3130
Australia
Tel: 61395847070
Tel: 1800141400
Email: [email protected]
Internet: http://www.alds.org.au
Pelizaeus Merzbacher Disease Support Group
43 Fir Tree Close
Flitwick
Bedfordshire, MK45 1NY
United Kingdom
Tel: 01525716907
Email: [email protected]
Internet: http://www.patient.co.uk/showdoc.asp?doc=26739559
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
PMD Foundation
1307 White Horse Road
Suite 603
Voorhees, NJ 08043
Tel: (609)443-9623
Email: [email protected] or [email protected]
Internet: http://www.pmdfoundation.org
Source: http://www.webmd.com