Disease: Systemic Sclerosis

Resources

Scleroderma Research Foundation
220 Montgomery Street
Suite 1411
San Francisco, CA 94104
USA
Tel: (415)834-9444
Fax: (415)834-9177
Tel: (800)441-2873
Email: [email protected]
Internet: http://www.srfcure.org/home

Scleroderma Foundation
300 Rosewood Drive, Suite 105
Danvers, MA 01923
USA
Tel: (978)463-5843
Fax: (978)463-5809
Tel: (800)722-4673
Email: [email protected]
Internet: http://www.scleroderma.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: [email protected]
Internet: http://www.aarda.org/

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: [email protected]
Internet: http://www.niams.nih.gov/

Juvenile Scleroderma Network, Inc.
1204 W. 13th Street
San Pedro, CA 90731
USA
Tel: (310)519-9511
Fax: (310)519-9511
Tel: (866)338-5892
Email: [email protected]
Internet: http://www.jsdn.org

National Registry for Childhood Onset Scleroderma
University of Pittsburgh
Arthritis Institute
726 South BST
3500 Terrace Street
Pittsburgh, PA 15261
USA
Tel: (412)383-8674
Fax: (412)648-9643
Tel: (800)603-8960
Email: [email protected]
Internet: http://www.scleroderma.org/medical/juvenile_registry.shtm

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary Alberta, T2R 1B7
Canada
Tel: 4032287956
Fax: 4032287853
Tel: 8882429182
Email: [email protected]
Internet: http://www.lupus.ab.ca

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc.
PO Box 4121
Brick, NJ 08723
Fax: (732)543-7285
Email: [email protected]

International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: [email protected]
Internet: http://www.sclero.org

European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: [email protected]
Internet: http://www.esid.org

AutoImmunity Community
Email: [email protected]
Internet: http://www.autoimmunitycommunity.org

Global Fibrosis Foundation
5036 Dr. Phillips Boulevard
Suite 244
Orlando, FL 32819
Tel: (407)909-0753
Fax: (407)909-0153
Tel: (800)872-6874
Email: [email protected]
Internet: http://www.globalfibrosis.com

Source: http://www.webmd.com

Disorder Subdivisions

  • Morphea
  • Linear Scleroderma
  • CREST Syndrome

Source: http://www.webmd.com

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