Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
USA
Fax: (212)483-8179
Tel: (800)465-4837
Email: http://www.liverfoundation.org/contact/
Internet: http://www.liverfoundation.org
NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583
Email: [email protected]
Internet: http://www2.niddk.nih.gov/
Hereditary Tyrosinemia Group (Groupe Aide Aux Enfants Tyrosinemiques Du Quebec)
3162 rue Granville
Jonquiere
Quebec, G7S 2B9
Canada
Tel: 4185481580
Email: [email protected]
Internet: http://www.cegep-chicoutimi.qc.ca/gaetq/
Save Babies Through Screening Foundation
P.O. Box 42197
Cincinnati, OH 45242
USA
Tel: (610)251-9876
Fax: (610)647-5757
Tel: (888)454-3383
Email: [email protected]
Internet: http://www.savebabies.org
Belgian Association for Metabolic Diseases
Alice Nahonlann 7
Melsele, 9120
Belgium
Tel: 0498701503
Fax: 037754839
Email: [email protected]
Internet: http://www.boks.be/site/index.php/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Joshua's Cure
P.O. Box 1106
Cary, NC 27511-1106
Tel: (919) 567-1922
Email: [email protected]
Internet: http://www.joshuascure.org
Cook for Love, Inc.
30 Seneca Street
Dobbs Ferry, NY 10522
Tel: (914)674-1025
Email: [email protected]
Internet: http://www.cookforlove.org
Source: http://www.webmd.com