Resources
FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Tel: (423)266-1632
Fax: (423)267-3124
Tel: (800)332-2373
Email: [email protected]
Internet: http://www.faces-cranio.org
Hypoparathyroidism Association, Inc.
PO Box 2258
Idaho Falls, ID 83403
Tel: (866)213-0394
Fax: (205)524-3857
Tel: (866)213-0394
Email: [email protected]. [email protected]. [email protected]. [email protected]
Internet: http://www.hypopara.org
Velo-Cardio-Facial Syndrome Educational Foundation
P.O. Box 12591
Dallas, TX 75225
USA
Tel: (214)360-4740
Email: [email protected]
Internet: http://www.vcfsef.org
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: [email protected]
Internet: http://www.heart.org
NIH/National Institute of Dental and Craniofacial Research
Building 31, Room 2C39
31 Center Drive, MSC 2290
Bethesda, MD 20892
USA
Tel: (301)496-4261
Fax: (301)480-4098
Tel: (866)232-4528
Email: [email protected]
Internet: http://www.nidcr.nih.gov/
National Foundation for Facial Reconstruction
333 East 30th Street, Lobby Unit
New York, NY 10016
Tel: (212)263-6656
Fax: (212)263-7534
Internet: http://www.nffr.org
NIH/National Institute on Deafness and Other Communication Disorders
31 Center Drive, MSC 2320
Communication Avenue
Bethesda, MD 20892-3456
Tel: (301)402-0900
Fax: (301)907-8830
Tel: (800)241-1044
TDD: (800)241-1105
Email: [email protected]
Internet: http://www.nidcd.nih.gov
"22q and You" Center
The Children's Hospital of Philadelphia
Donna M. McDonald-McGinn, MS, CGC, Program Director
34th Street and Civic Center Boulevard Room 8C05
Philadelphia, PA 19104
Tel: (215)590-2920
Fax: (215)590-3298
Tel: (800)879-2467
Email: Alice Bailey - [email protected] or [email protected]
Internet: http://www.chop.edu/service/22q-and-you-center/home.html
Chromosome 22 Central
c/o Murney Rinholm
7108 Partinwood Drive
Fuquay-Varina, NC 27526
USA
Tel: (919)567-8167
Email: [email protected]
Internet: http://www.c22c.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
International 22q11.2 Deletion Syndrome Foundation, Inc.
P.O. Box 2269
Cinnaminson, NJ 08077
Tel: (877)739-1849
Email: [email protected]
Internet: http://www.22q.org
Cleft Lip and Palate Foundation of Smiles
2044 Michael Ave SW
Wyoming, MI 49509
Tel: (616)329-1335
Email: [email protected]
Internet: http://www.cleftsmile.org
Source: http://www.webmd.com
