Resources
Children's Tumor Foundation
95 Pine Street
16th Floor
New York, NY 10005-4002
Tel: (212)344-6633
Fax: (212)747-0004
Tel: (800)323-7938
TDD: (212)344-6633
Email: [email protected]
Internet: http://www.ctf.org/
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
Neurofibromatosis, Inc.
213 S. Wheaton Ave.
Wheaton, IL 60187
USA
Tel: (630)510-1115
Fax: (630)510-8508
Tel: (800)942-6825
Email: [email protected]
Internet: http://www.nfnetwork.org
Neurofibromatosis Clinic at Texas Children's Hospital
6701 Fannin Street, #1560
Houston, TX 77030
Tel: (832)822-4280
Tel: (800)364-5437
Email: [email protected]
Internet: http://www.texaschildrens.org/Locate/Departments-and-Services/Genetic-Disorders/Neurofibromatosis-Clinic/
Cedars-Sinai Medical Genetics Institute
8700 Beverly Blvd
PACT Suite 400
Los Angeles, CA 90048
USA
Tel: (310)423-9914
Fax: (310)423-2080
Tel: (800)233-2771
Internet: http://www.cedars-sinai.edu/Patients/Programs-and-Services/Medical-Genetics-Institute/
Neurofibromatosis Clinic
The Children's Hospital of Philadelphia
34th Street and Civic Center Boulevard
Room 9028
Philadelphia, PA 19104
Tel: (215)590-2920
Tel: (800)879-2467
Internet: http://www.chop.edu/healthinfo/fibromatosis-and-desmoid-tumors.html or http://www.chop.edu/service/neurofibromatosis/home.html
Children's National Medical Center
Genetics Department
Attn: Kenneth Rosenbaum MD
111 Michigan Ave. NW
Suite 1950
Washington, DC 20010
Tel: (202)476-2327
Tel: (888)884-2327
Email: [email protected]
Internet: http://www.childrensnational.org/
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Massachusetts General Hospital Neurofibromatosis Clinic
15 Parkman St. 8th Floor, Room 835
Boston, MA 02114
USA
Tel: (617)724-7856
Fax: (617)724-8769
Email: [email protected]
Internet: http://neurosurgery.mgh.harvard.edu/NFclinic/
New England Consortium of Metabolic Programs
Children's Hospital Boston
1 Autumn Street, Room 525
Boston, MA 02115
USA
Tel: (617)355-7346
Fax: (617)730-0907
Email: [email protected]_
Internet: http://www.newenglandconsortium.org
Comer Children's Hospital - University of Chicago (Neurofibromatosis Clinic)
Pediatric Neurology
5721 S. Maryland Avenue, MC3055
Chicago, IL 60637
USA
Tel: (773)834-8064
Fax: (773)702-4786
Email: [email protected]
Internet: http://www.uchicagokidshospital.org/specialties/neurology/patient-guides/neurofibromatosis/
BC Neurofibromatosis Foundation
Box 5339
Victoria, BC, V8R 6S4
Canada
Tel: 800385BCNF (2263)
Email: [email protected]
Internet: http://www.bcnf.bc.ca
Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Internet: http://www.rare-cancer.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3174
Fax: (650)462-3144
Email: [email protected]
Internet: http://www.letthemhear.org
Alberta Neurofibromatosis Association
636 Hunterfield Place NW
Calgary
Alberta, T2K 4L6
Canada
Tel: 4032754894
Tel: 8669392263
Email: [email protected] or [email protected]
Internet: http://www.albertanf.org
Cancer.Net
American Society of Clinical Oncology
2318 Mill Road Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: [email protected]
Internet: http://www.cancer.net/
Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: [email protected]
Internet: http://www.medicalhomeportal.org
Source: http://www.webmd.com
