Disease: Waardenburg Syndrome

Resources

National Organization for Albinism and Hypopigmentation
PO Box 959
East Hempstead, NH 03826-0959
Tel: (603)887-2310
Fax: (800)648-2310
Tel: (800)473-2310
Email: [email protected]
Internet: http://www.albinism.org

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com

FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Tel: (423)266-1632
Fax: (423)267-3124
Tel: (800)332-2373
Email: [email protected]
Internet: http://www.faces-cranio.org

Lighthouse International
111 E 59th St
New York, NY 10022-1202
Tel: (800)829-0500
Email: [email protected]
Internet: http://www.lighthouse.org

National Vitiligo Foundation
10945 Reed Hartman Highway
Suite 216
Cincinnati, OH 45242
USA
Tel: (513)541-3903
Fax: (513)558-0198
Email: [email protected]
Internet: http://www.nvfi.org

Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place NW
Washington, DC 20007-2778
United States
Tel: (202)337-5220
Fax: (202)337-8314
Tel: (866)337-5220
TDD: (202)337-5221
Email: [email protected]
Internet: http://www.agbell.org

American Foundation for the Blind
2 Penn Plaza
Suite 1102
New York, NY 10121
Tel: (212)502-7600
Fax: (888)545-8331
Tel: (800)232-5463
TDD: (212)502-7662
Email: [email protected]
Internet: http://www.afb.org

American Council of the Blind
2200 Wilson Boulevard
Suite 650
Arlington, VA 22201
Tel: (202)467-5081
Fax: (202)465-5085
Tel: (800)424-8666
Email: [email protected]
Internet: http://www.acb.org/

National Association of the Deaf
8630 Fenton Street
Suite 820
Silver Springs, MD 20910
USA
Tel: (301)587-1788
Fax: (301)587-1791
TDD: (301)587-1789
Email: [email protected]
Internet: http://www.nad.org

NIH/National Eye Institute
31 Center Dr
MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: [email protected]
Internet: http://www.nei.nih.gov/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org

Let Them Hear Foundation
1900 University Avenue, Suite 101
East Palo Alto, CA 94303
Tel: (650)462-3174
Fax: (650)462-3144
Email: [email protected]
Internet: http://www.letthemhear.org

American Academy of Audiology
11730 Plaza America Drive, Suite 300
Reston, VA 20190
Tel: (703)790-8466
Fax: (703)790-8631
Tel: (800)222-2336
Email: [email protected]
Internet: http://www.audiology.org

Perkins School for the Blind
175 North Beacon Street
Watertown, MA 02472
Tel: (617)924-3434
Fax: (617)926-2027
Email: [email protected]
Internet: http://www.Perkins.org

National Consortium on Deaf-Blindness
The Teaching Research Institute
345 N. Monmouth Avenue
Monmouth, OR 97361
Tel: (800)438-9376
Fax: (503)838-8150
Tel: (800)438-9376
TDD: (800)854-7013
Email: [email protected]
Internet: http://www.nationaldb.org

Hearing Loss Association of America
7910 Woodmont Avenue
Suite 1200
Bethesda, MD 20814
Tel: (301)657-2248
Fax: (301)913-9413
Email: [email protected]
Internet: http://www.hearingloss.org

Cleft Lip and Palate Foundation of Smiles
2044 Michael Ave SW
Wyoming, MI 49509
Tel: (616)329-1335
Email: [email protected]
Internet: http://www.cleftsmile.org

Source: http://www.webmd.com

Disorder Subdivisions

  • Waardenburg syndrome type IIA (WS2A)
  • Waardenburg syndrome type IIB (WS2B)
  • Waardenburg syndrome type III (WS3)
  • Waardenburg syndrome type II (WS2)
  • Waardenburg syndrome type IV (WS4)
  • Waardenburg syndrome type I (WS1)

Source: http://www.webmd.com

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