Resources
Dystrophic Epidermolysis Bullosa Research Association of America, Inc. (DEBRA)
16 East 41st Street
3rd Floor
New York, NY 10017
Tel: (212)868-1573
Fax: (212)868-9296
Tel: (866)332-7276
Email: [email protected]
Internet: http://www.debra.org
Oley Foundation
214 Hun Memorial MC-28
Albany Medical Center
Albany, NY 12208-3478
USA
Tel: (518)262-5079
Fax: (518)262-5528
Tel: (800)776-6539
Email: [email protected]
Internet: http://www.oley.org
Coalition for Heritable Disorders of Connective Tissue (CHDCT)
4301 Connecticut Avenue, NW Suite 404
Washington, DC 20008
Tel: (202)362-9599
Fax: (202)966-8553
Tel: (800)778-7171
Email: [email protected]
Internet: http://www.chdct2.org/
DebRA
13 Wellington Business Park
Dukes Ride
Crowthorne
Berkshire, RG45 6LS
United Kingdom
Tel: 441344771961
Fax: 441344762661
Email: [email protected]
Internet: http://www.debra.org.uk
EB Medical Research Foundation
2757 Anchor Ave
Los Angeles, CA 90064
Tel: (310)854-0957
Email: [email protected]
Internet: http://www.ebkids.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Epidermolysis Bullosa Action Network
16613 Milan De Avila
Tampa, FL 33613
Tel: (813)325-1955
Email: [email protected]
Internet: http://www.ebanusa.org
Australasian Blistering Diseases Foundation
St. George Hospital,
Department of Dermatology
Gray Street
Kogarah
Sydney, NSW 2217
Australia
Tel: 0291132088
Fax: 0291132886
Email: [email protected]
Internet: http://www.blisters.org.au/BDHome.html
Source: http://www.webmd.com