Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
United Mitochondrial Disease Foundation
8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
United States
Tel: (412)793-8077
Fax: (412)793-6477
Tel: (888)317-8633
Email: [email protected]
Internet: http://www.umdf.org
Lactic Acidosis Support Trust
1A Whitley Close
Middlewich
Cheshire, CW10 0NQ
United Kingdom
Tel: 0160683719
Fax: 01606837198
National Neutropenia Network
P.O. Box 1693
Brighton, MI 48116
USA
Tel: (517)294-0736
Email: [email protected]
Internet: http://www.neutropenianet.org
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Tel: (214)784-7212
Fax: (214)784-1307
Tel: (800)242-8721
Email: [email protected]
Internet: http://www.heart.org
National Transplant Assistance Fund
150 N. Radnor Chester Road
Suite F-120
Radnor, PA 19087
USA
Tel: (610)353-9684
Fax: (610)535-6106
Tel: (800)642-8399
Email: [email protected]
Internet: http://www.transplantfund.org
Transplant Recipients International Organization, Inc.
2100 M Street NW 170-353
Washington, DC 20037-1233
USA
Tel: (202)293-0980
Tel: (800)874-6386
Email: [email protected]
Internet: http://www.trioweb.org/index.shtml
NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: [email protected]
Internet: http://www.nhlbi.nih.gov/
American Organ Transplant Association
21175 Tomball Parkway
194
Houston, TX 77070
Tel: (713)344-2402
Fax: (713)344-9422
Email: [email protected]
Internet: http://www.aotaonline.org
Neutropenia Support Association, Inc.
971 Corydon Avenue
P.O. Box 243
Winnepeg
Manitoba, R3M 3S7
Canada
Tel: 2044898454
Tel: 8006638876
Email: [email protected]
Internet: http://www.neutropenia.ca
Montgomery Heart Foundation for Cardiomyopathy
1830 E. Monument St./Suite 7300
Baltimore, MD 21205
Tel: (402)502-2578
Fax: (443)287-4109
Email: [email protected]
Internet: http://www.hopkinsmedicine.org/cardiomyopathy/
TransWeb
University of Michigan Transplant Center
NIB Room #2C40
300 North Ingalls Street, SPC 5451
Ann Arbor, MI 48109-5451
USA
Tel: (734)232-1113
Fax: (734)232-1111
Email: [email protected]
Internet: http://www.transweb.org/index.shtml
Cardiomyopathy Association
Chiltern Court, Unit 10
Asheridge Rd Ind
Chesham, HP5 2PX
United Kingdom
Tel: 4401494791224
Fax: 4401494797199
Tel: 08000181024
Email: [email protected]
Internet: http://www.cardiomyopathy.org
Cardiac Arrhythmias Research and Education Foundation, Inc. (C.A.R.E)
427 Fulton Street
P.O. Box 69
Seymour, WI 54165
USA
Fax: (920)833-7005
Tel: (800)404-9500
Email: [email protected]
Internet: http://www.longqt.org or http://www.careforhearts.org
Children's Mitochondrial Disease Network
Mayfield House
30 Heber Walk
Chester Way
Northwich
England, CW9 5JB
United Kingdom
Tel: 440160643946
Fax: 440160643946
Email: [email protected]
Internet: http://www.emdn-mitonet.co.uk/
Barth Syndrome Foundation
P.O. Box 618
Larchmont, NY 10538
Tel: (850)223-1128
Fax: (518)213-4061
Email: [email protected]
Internet: http://www.barthsyndrome.org
Children's Cardiomyopathy Foundation
PO Box 547
Tenafly, NJ 07670
USA
Tel: (866)808-2873
Fax: (201)227-7016
Email: [email protected]
Internet: http://www.childrenscardiomyopathy.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
MitoAction
14 Pembroke Street
Medford, MA 02155
Tel: (888)648-6228
Fax: (888)648-6228
Email: [email protected]
Internet: http://www.MitoAction.org
Source: http://www.webmd.com
