Resources
CLIMB (Children Living with Inherited Metabolic Diseases)
Climb Building
176 Nantwich Road
Crewe, CW2 6BG
United Kingdom
Tel: 4408452412173
Fax: 4408452412174
Email: [email protected]
Internet: http://www.CLIMB.org.uk
Myotubular Myopathy Resource Group
2602 Quaker Drive
Texas City, TX 77590
Tel: (409)945-8569
Email: [email protected]
Internet: http://www.mtmrg.org
Contact A Family
209-211 City Road
London, EC1V 1JN
United Kingdom
Tel: 02076088700
Fax: 02076088701
Tel: 08088083555
Email: [email protected]
Internet: http://www.cafamily.org.uk/
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
USA
Tel: (520)529-2000
Fax: (520)529-5300
Tel: (800)572-1717
Email: [email protected]
Internet: http://www.mda.org/
Muscular Dystrophy Campaign
61 Southwark Street
London, SE1 0HL
United Kingdom
Tel: 02078034800
Email: [email protected]
Internet: http://www.muscular-dystrophy.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
European Alliance of Neuromuscular Disorders Associations
MDG Malta 4
Gzira Road
Gzira, GAR 04
Malta
Tel: 0035621346688
Fax: 0035621318024
Email: [email protected]
Internet: http://www.eamda.net
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Cure CMD (Congenital Muscular Dystrophy)
P.O. Box 701
Olathe, KS 66051
USA
Tel: (866)400-3626
Email: [email protected]
Internet: http://www.curecmd.org
Joshua Frase Foundation
222 Forbes Rd.
Suite 207
Braintree, MA 02184
Tel: (904)273-9818
Fax: (904)607-1358
Email: [email protected]
Internet: www.joshuafrase.org
Myotubular Trust
15a Barnard Road
London SW11 1QT
Tel: 07518 113692
Email: [email protected]
Internet: http://www.myotubulartrust.org
Source: http://www.webmd.com
