Disease: AAT Deficiency

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Alpha-1 Association
2937 SW 27 Avenue Suite 106
Alpha-1 Genetic Counselor: 1-800-785-3177
Miami, FL 33133
Tel: (305)648-0088
Fax: (305)648-0089
Tel: (800)521-3025
Email: info@alpha1.org
Internet: http://www.alpha1.org

American Liver Foundation
39 Broadway, Suite 2700
New York, NY 10006
USA
Fax: (212)483-8179
Tel: (800)465-4837
Email: http://www.liverfoundation.org/contact/
Internet: http://www.liverfoundation.org

American Lung Association
1301 Pennsylvania Ave NW
Suite 800
Washington, DC 20004
USA
Tel: (202)785-3355
Fax: (202)452-1805
Tel: (800)586-4872
Email: info@lungusa.org
Internet: http://www.lungusa.org

Children's Liver Disease Foundation
36 Great Charles Street
Birmingham, B3 3JY
United Kingdom
Tel: 01212123839
Fax: 01212124300
Email: info@childliverdisease.org
Internet: http://www.childliverdisease.org

Alpha-1 Foundation
2937 SW 27th Avenue Suite 302
Miami, FL 33133
USA
Tel: (305)567-9888
Fax: (305)567-1317
Tel: (877)228-7321
Email: info@alphaone.org
Internet: http://www.alphaone.org

Alpha-1 Research Registry
c/o Medical University of South Carolina
96 Jonathan Lucas St., Suite 812-CSB, MSC 630
Charleston, SC 29425-6300
USA
Tel: (843)792-0260
Fax: (843)792-0297
Tel: (877)886-2383
Email: alphaone@musc.edu
Internet: http://www.alphaoneregistry.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Alpha-1 Advocacy Alliance
PO Box 202
Wolftown, VA 22748
Tel: (540)948-6777
Fax: (540)948-6763
Tel: (866)367-2122
Email: webmaster@alpha1advocacy.org
Internet: http://www.alpha1advocacy.org

COPD-ALERT
3210 N. Leisure World Blvd.
Ste. 614
Silver Spring, MD 20906
Tel: (301)598-6693
Fax: (301)598-6926
Email: vlady@copd-alert.com
Internet: http://www.copd-alert.com

Childhood Liver Disease Research and Education Network
c/o Joan M. Hines, Research Administrator
Children's Hospital Colorado
13123 E 16th Ave. B290
Aurora, CO 80045
Tel: (720)777-2598
Fax: (720)777-7351
Email: joan.hines@childrenscolorado.org
Internet: http://www.childrennetwork.org

Source: http://www.webmd.com

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Source: http://www.webmd.com

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