Disease: Abiotrophic Ophthalmoplegia Externa


March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Prevent Blindness America
211 West Wacker Drive
Suite 1700
Chicago, IL 60606
Tel: (312)363-6001
Fax: (312)363-6052
Tel: (800)331-2020
Email: info@preventblindness.org
Internet: http://www.preventblindness.org

NIH/National Eye Institute
31 Center Dr
MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: 2020@nei.nih.gov
Internet: http://www.nei.nih.gov/

AboutFace International
123 Edward Street, Suite 1003
Ontario, M5G 1E2
Tel: 4165972229
Fax: 4165978494
Tel: 8006653223
Email: info@aboutfaceinternational.org
Internet: http://www.aboutface.ca/

Engle Laboratory at Children's Hospital Boston
CLS 14076
300 Longwood Ave
Boston, MA 02115
Tel: (617)919-2168
Fax: (617)919-2769
Email: candrews@enders.tch.harvard.edu
Internet: http://www.childrenshospital.org/research/engle/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Source: http://www.webmd.com

Disorder Subdivisions

  • congenital fibrosis of the extraocular muscles 2 (CFEOM 2)
  • congenital fibrosis of the extraocular muscles 3 (CFEOM 3)
  • Tukel syndrome
  • congenital fibrosis of the extraocular muscles 1 (CFEOM 1)

Source: http://www.webmd.com

Health Services in Toronto

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