Disease: Acanthocytosis-Neurologic Disorder

Resources

WE MOVE (Worldwide Education and Awareness for Movement Disorders)
5731 Mosholu Avenue
Bronx, NY 10471
USA
Tel: (347)843-6132
Fax: (718)601-5112
Email: wemove@wemove.org
Internet: http://www.wemove.org

Contact A Family
209-211 City Road
London, EC1V 1JN
United Kingdom
Tel: 02076088700
Fax: 02076088701
Tel: 08088083555
Email: info@cafamily.org.uk
Internet: http://www.cafamily.org.uk/

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Advocacy for Neuroacanthocytosis Patients
32 Launceston Place
London, W8 5RN
United Kingdom
Tel: 4402079372938
Email: glenn@naadvocacy.org
Internet: http://www.naadvocacy.org

Movement Disorder Society
555 E. Wells Street
Suite 1100
Milwaukee, WI 53202-3823
Tel: (414)276-2145
Fax: (414)276-3349
Email: info@movementdisorders.org
Internet: http://www.movementdisorders.org

Source: http://www.webmd.com

Disorder Subdivisions

  • chorea-acanthocytosis (choreoacanthocytosis)
  • McLeod syndrome
  • pantothenate kinase-associated neurodegeneration (PKAN)
  • Huntingon's disease-like 2

Source: http://www.webmd.com

Health Services in Toronto

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