Disease: Aggressive Mastocytosis

Resources

The Mastocytosis Society, Inc.
PO Box 129
Hastings, NE 68902-0129
USA
Email: stratigic.planning@tmsforacure.org
Internet: http://www.tmsforacure.org

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

CMPD Education Foundation
P.O. Box 4758
Scottsdale, AZ 85261
Email: ian.sweet@homemail.com.au
Internet: http://www.mpdinfo.org/CMPD_foundation.html

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Cancer.Net
American Society of Clinical Oncology
2318 Mill Road Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: contactus@cancer.net
Internet: http://www.cancer.net/

Mastokids
P.O. Box 895
Mandeville, LA 70470-0895
USA
Email: listmom@mastokids.org
Internet: http://www.mastokids.org

Source: http://www.webmd.com

Disorder Subdivisions

  • Mast Cell Leukemia
  • Cutaneous Mastocytosis
  • Indolent Systemic Mastocytosis
  • Mastocytosis with an Associated Hematological Disorder
  • Mast Cell Sarcoma/Extracutaneous Mastocytoma
  • Aggressive Systemic Mastocytosis
  • urticaria pigmentosa

Source: http://www.webmd.com

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