Resources
Amyotrophic Lateral Sclerosis Association
27001 Agoura Road
Suite 250
Calabasas Hills, CA 91301-5104
USA
Tel: (818)880-9007
Fax: (818)880-9006
Tel: (800)782-4747
TDD: (818)593-3540
Email: [email protected]
Internet: http://www.alsa.org
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/
Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Internet: http://www.rare-cancer.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Adult Polyglucosan Body Disease Research Foundation
8 West 37th Street, Suite 901
New York, NY 10018
Tel: (646)580-5610
Fax: (212)643-0963
Email: [email protected]
Internet: http://www.apbdrf.org
Frederick R Corne Foundation
PO Box 1276
Perrysburg, OH 43552-1246
Tel: (419)407-6425
Email: [email protected]
Internet: http://www.frcfound.org
Source: http://www.webmd.com
