Disease: Arnold-Chiari Malformation


American Syringomyelia & Chiari Alliance Project
P.O. Box 1586
Longview, TX 75606-1586
Tel: (903)236-7079
Fax: (903)757-7456
Tel: (800)272-7282
Email: info@asap.org
Internet: http://www.asap.org

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Spina Bifida Association of America
4590 MacArthur Boulevard NW
Suite 250
Washington, DC 20007-4226
Tel: (202)944-3285
Fax: (202)944-3295
Tel: (800)621-3141
Email: sbaa@sbaa.org
Internet: http://www.sbaa.org

Hydrocephalus Association
4340 East West Highway Ste 950
Bethesda, MD 20814
Tel: (301)202-3811
Fax: (301)202-3813
Tel: (888)598-3789
Email: info@hydroassoc.org
Internet: http://www.hydroassoc.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

Canadian Syringomyelia Network
69 Penny Crescent
Ontario, L3P 5X7
Tel: 9054718278
Fax: 9059444844
Email: barb@csn.ca
Internet: http://www.csn.ca/

Hydrocephalus Support Group, Inc.
1933 Mistflower Glen Ct.
Chesterfield, MO 63005-4236
Tel: (636)532-8228
Fax: (314)251-5871
Email: hydrob@earthlink.net

Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
Tel: (407)895-0802
Email: staff@birthdefects.org
Internet: http://www.birthdefects.org

World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square, PA 19073
Tel: (610)353-4737
Email: chiari-owner@yahoogroups.com
Internet: http://www.wacma.com

Christopher S. Burton Syringomyelia Foundation, Inc.
P.O. Box 100335
Fort Lauderdale, FL 33310-0335
Tel: (954)727-5137
Fax: (954)636-2409
Email: info@thesmfoundation.org
Internet: http://www.thesmfoundation.org

Conquer Chiari
320 Osprey Court
Wexford, PA 15090
Tel: (724)940-0116
Fax: (724)940-0172
Email: director@conquerchiari.org
Internet: http://www.conquerchiari.org

Chiari & Syringomyelia Foundation
29 Crest Loop
Melville, NY 11747
Tel: (718)966-2593
Internet: http://www.CSFinfo.org

Source: http://www.webmd.com

Disorder Subdivisions

  • Chiari type II (Chiari malformation II)
  • Chiari type III (Chiari malformation III)
  • Chiari type IV (Chiari malformation IV)
  • Chiari type 0 (Chiari malformation 0)
  • Chiari type I (Chiari malformation I)

Source: http://www.webmd.com

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