Disease: AVED

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
USA
Tel: (763)553-0020
Fax: (763)553-0167
Email: naf@ataxia.org
Internet: http://www.ataxia.org

Retinitis Pigmentosa International
P.O. Box 900
Woodland Hills, CA 91365
Tel: (818)992-0500
Fax: (818)992-3265
Tel: (800)344-4877
Email: info@rpinternational.org
Internet: http://www.rpinternational.org

National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
Tel: (781)341-8333
Fax: (781)341-8333
Tel: (800)673-6922
Email: nsf@scoliosis.org
Internet: http://www.scoliosis.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

euro-ATAXIA
Lincoln House
Kennington Park
1-3 Brixton Road
London, SW9 6DE
United Kingdom
Tel: 4402075821444
Email: marco.meinders@euro-ataxia.eu
Internet: http://www.euro-ataxia.eu/

Canadian Association for Familial Ataxias - Claude St-Jean Foundation
3800 Radisson Street Office 110
Montreal
Quebec, H1M 1X6
Canada
Tel: 5143218684
Tel: 8553218684
Email: ataxie@lacaf.org
Internet: http://www.lacaf.org

Friedreich's Ataxia Research Alliance
533 W. Uwchlan Ave.
Downingtown, VA 19335
USA
Tel: (484)879-6160
Fax: (484)872-1402
Email: info@cureFA.org
Internet: http://www.curefa.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Source: http://www.webmd.com

Disorder Subdivisions

  • None

Source: http://www.webmd.com

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