Disease: Cystic Mesenchymal Hamartoma

Resources

Rare Cancer Alliance
1649 North Pacana Way
Green Valley, AZ 85614
USA
Internet: http://www.rare-cancer.org

International Pleuropulmonary Blastoma Registry
Children's Hospitals and Clinics of Minnesota
2545 Chicago Ave. S.
Suite 412
Minneapolis, MN 55404
USA
Tel: (612)813-7115
Fax: (612)813-7108
Email: [email protected]
Internet: http://www.ppbregistry.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Cancer.Net
American Society of Clinical Oncology
2318 Mill Road Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: [email protected]
Internet: http://www.cancer.net/

BeatSarcoma
76 Ellsworth Street
San Francisco, CA 94110
Tel: (415)826-0474
Email: [email protected]
Internet: http://www.beatsarcoma.org/

Pleuropulmonary Blastoma Research at Children's National Medical Center
111 Michigan Ave. NW
Washington, DC 20010
Tel: (202)476-2815
Email: [email protected]
Internet: http://www.ppbgeneticstudy.org/collaborators/collaborators.html or http://www.ppbgeneticstudy.org

Source: http://www.webmd.com

Disorder Subdivisions

  • PPB family tumor susceptibility syndrome

Source: http://www.webmd.com

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