Resources
Cystinuria Support Network
22814 NE 21st Place
Redmond, WA 98053
Tel: (425)868-2996
Fax: (425)897-0675
Email: [email protected]
Internet: http://www.cystinuria.com
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: [email protected]
Internet: http://www.marchofdimes.com
American Kidney Fund, Inc.
11921 Rockville Pike
Suite 300
Rockville, MD 20852
USA
Tel: (800)638-8299
Email: [email protected]
Internet: http://www.kidneyfund.org
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Tel: (212)889-2210
Fax: (212)689-9261
Tel: (800)622-9010
Email: [email protected]
Internet: http://www.kidney.org
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: [email protected]
Internet: http://www.madisonsfoundation.org
International Cystinuria Foundation
712 Great Plains Court
PO Box 271004
Fort Collins, CO 80527-1004
Tel: (970)204-0031
Email: [email protected]
Internet: http://www.cystinuria.org
Rare Kidney Stone Consortium
Mayo Clinic
200 First St., SW
Rochester, MN 55901
Tel: (507)266-8265
Fax: (507)255-0770
Tel: (800)270-4637
Email: [email protected]
Internet: http://www.rarekidneystones.org
Source: http://www.webmd.com