Disease: EDS


Ehlers-Danlos National Foundation
1760 Old Meadow Road, Suite 500
McLean, VA 22102
Tel: (703)506-2892
Fax: (703)506-3266
Email: ednfstaff@ednf.org
Internet: http://www.ednf.org

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

Coalition for Heritable Disorders of Connective Tissue (CHDCT)
4301 Connecticut Avenue, NW Suite 404
Washington, DC 20008
Tel: (202)362-9599
Fax: (202)966-8553
Tel: (800)778-7171
Email: chdct@pxe.org
Internet: http://www.chdct2.org/

Ehlers-Danlos Support Group UK
PO Box 748
Borehamwood, WD6 9HU
United Kingdom
Tel: 02087365604
Email: director@ehlers-danlos.org
Internet: http://www.ehlers-danlos.org

Ehlers Danlos Foundation of New Zealand
368 Butler Road, RD 3
Waipawa 4273
Hawkes Bay,
New Zealand
Tel: 64068747799
Fax: 64068747799
Email: flopsy@ihug.co.nz
Internet: http://www.edfnz.org.nz

EDS Today
PO Box 1382
Mays Landing, NJ 08330
Tel: (609)625-3182
Email: info@edstoday.org
Internet: http://www.edstoday.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

European Skeletal Dysplasia Network
Institute of Genetic Medicine
Newcastle University
International Centre for Life
Central Parkway
Newcastle upon Tyne, NE1 3BZ
United Kingdom
Tel: 441612755642
Fax: 441612755082
Email: info@esdn.org
Internet: http://www.esdn.org

Source: http://www.webmd.com

Disorder Subdivisions

  • Ehlers Danlos syndrome, classic type
  • Ehlers Danlos syndrome, hypermobility type
  • Ehlers Danlos syndrome, vascular type
  • Ehlers Danlos syndrome, kyphoscoliotic type
  • Ehlers Danlos syndrome, arthrochalasia type
  • Ehlers Danlos syndrome, dermatosparaxis type
  • Ehlers Danlos syndrome, progeroid form
  • Ehlers Danlos syndrome, cardiac valvular form

Source: http://www.webmd.com

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