Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational
Official Title: NIH Participation to USIDNET Registry
Brief Summary:
Background:
- People with primary immune deficiency diseases (PIDD) have weak immune systems. This makes it hard for their bodies to fight infection. The Immune Deficiency Foundation has a network to collect data about people with PIDD. It is called the United States Immunodeficiency Network. It will help doctors and scientists better understand these disorders. The goal is to get medical data for everyone with these disorders in the U.S. and Canada. Data will be stored in a registry. Researchers can use it to study if these disorders are increasing. They can also learn how the disorders are diagnosed and treated.
Objectives:
- To collect data on people with primary immune deficiency disorders.
Eligibility:
- People who have a PIDD, or are a carrier for one.
Design: