Clinical Trial: Qualitative and Quantitative Study Which Aims to Determine the Specifics of the Announcement for the Diagnosis of Patients With Craniosynostosis and Their Parents to Better Support Them in Their Care

Study Status: Completed
Recruit Status: Completed
Study Type: Observational

Official Title: Craniosynostosis: How to Improve the Diagnosis and Assist Patients and Their Families?

Brief Summary:

The purposes of this study are:

to better understand the experience of the announcement for the diagnostic of craniosynostosis to patients and their families to improve the understanding of it and it modes of appropriation
to compare the announcement process concerning "simple" and "complex" forms.
to identify the intra-family issues at the announcement of a genetic mutation.
to reconstruct the care course of patients by analyzing the time of the announcement and the post-operative period.