Study Status: Completed
Recruit Status: Completed
Study Type: Observational [Patient Registry]
Official Title: The ANCA Vasculitis Questionnaire (AAV-PRO©)
Brief Summary: The aim of this project is to develop a disease specific patient reported outcome measure (PROM) for patients with AAV (the AAV-PRO). Investigators are developing and validating a questionnaire to assess quality of life in patients with ANCA-associated vasculitis (AAV). Patients with AAV have inflammation in the small blood vessels leading to involvement of a range of organs and can suffer from ongoing disease activity or treatment side effects. Quality of life can be measured by patient reported outcome measures (PROMs).