Study Status: RECRUITING
Recruit Status: RECRUITING
Study Type: OBSERVATIONAL
Official Title: Benchmarking Integrated Care for People Living With Huntington's Disease in England (Integrate-HD Study)
Brief Summary:
The survey and full study information can be accessed here: https://southampton.qualtrics.com/jfe/form/SV_8iEedDJZy4xaiI6
The goal of this anonymous survey is to benchmark integrated care from the perspective of service users in adults living with Huntington's Disease, including informal caregivers.
The main question it aims to answer is: Is standard of care for people living with HD in England person-centred integrated care from the perspective of service users?
Participants will complete a one-time anonymous survey either online or on paper, according to their preference, that takes an average of 20-30 minutes.
Participants can take breaks as needed, picking up the survey from where it was paused.