Clinical Trial: Institutional Registry of Haemorrhagic Hereditary Telangiectasia

Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational




Official Title: Institutional Registry of Haemorrhagic Hereditary Telangiectasia

Brief Summary:

The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival.

This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.