Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational
Official Title: The Rare Disease Clinical Research Network Natural History Study of MNGIE
Brief Summary:
This is a multi-center natural history study of MNGIE (Mitochondrial NeurogastroIntestinal Encephalopathy). Patients will be followed over time to assess clinical symptoms. The investigators hope to learn more about the disease of MNGIE as well as develop useful measures of disease status for use in future clinical trials.
Additional clinical centers will be listed as they become available.