Clinical Trial: Natural History Study of Oculopharyngeal Muscular Dystrophy

Study Status: Not yet recruiting
Recruit Status: Not yet recruiting
Study Type: Observational




Official Title: Natural History Study of Oculopharyngeal Muscular Dystrophy

Brief Summary: The objective of this study is to test a set of clinical outcome measures longitudinally in a cohort of OPMD patients to identify ones that show quantifiable change over time as the disease progresses. The investigators' goal is to delineate the natural history of OPMD.